2 Comments6 December 2018 | Kath Hope The Lane Fox Respiratory + Sleep Disorder Unit of Guy's and St Thomas' NHS Foundation Trust are looking for adult patients for a new trial who are diagnosed with moderate to severe obstructive obstructive sleep apnoea and have been effectively treated with CPAP for at least 6 months. 
Patients interested in the trial must already use their CPAP on a regular basis for almost the whole night. The trial takes only two weeks and will involve coming off CPAP, but the major benefits for participants are that they will have a complete reassessment of the current severity of OSA (Obstructive Sleep Apnoea) and their CPAP treatment as well as have additional assessments such as lung function testing, and of course support scientific knowledge to optimise therapy of Obstructive Sleep Apnoea in the future. If you are interested in participating please contact esther.schwarz@gstt.nhs.uk or Joerg.Steier@gstt.nhs.uk to discuss eligibility. Read about one patient's story who has almost completed his trial by clicking here |
14 September 2018 | Kath Hope  We're looking forward to our annual trip to the Scottish Association for Sleep Apnoea (SASA) in East Kilbride. The event is always a great success and we look forward to contributing to the day, and of course meeting old friends and new. |
17 August 2018 | Kath Hope  Looking forward to our next event at the #BiltonFest, raising awareness of sleep apnoea and supporting existing sufferers. There's such a great itinerary too, including live bands to chill out and listen to when our work is done. |
6 August 2018 | Kath Hope  Somnex have kindly given us a 20% discount code to share for the first ever Sleep Show dedicated to sleep health. We'll be attending, along with our specialist sleep nurse and do look forward to meeting you. |
5 August 2018 | Kath Hope  We will be attending the Hull Show this year on Saturday 11th and Sunday 12th August. This is a fun event for all the family (and the dogs as there is a dog show), and we'll be there to raise awareness of Sleep Apnoea to all those weary people unaware they are undiagnosed with this. We will also be offering face-to-fact support to people already diagnosed and will have a selection of our products for sale at the event. Come and join us and have a go on our tombola too. Hull Show is held at the beautiful East Park in Hull, and free entry is via the main gates on Holderness Road, HU8 8JU Gates open at 11am on both days. |
1 Comment30 June 2018 | Kath Hope  |
18 August 2017 | Kath Hope  ***UPDATE*** After our Open Day and what a busy and successful day it was! Thanks to everyone who supported us. News of our Official Open Day, celebrating our new premises, raising awareness of sleep apnoea and support for those diagnosed. Everyone is welcome to this free event. |
2 Comments16 February 2017 | Kath Hope  I have written before warning people not to use products like Vaseline or Vicks inside the nostrils, but still we as a charity are hearing this is being recommended by some doctors and nurses. Whilst it is rare, this can lead to lipoid pneumonia and is not worth the risk! Apart from the health risks, products containing petroleum jelly and other substances can also damage the soft parts of the masks, causing leaks and costly replacements. |
7 October 2016 | Kath Hope  This particular question comes up such a lot in our support groups...."should I use my CPAP or Ventilator when I have a cold?" The answer is almost always a big "YES." During a cold or flu virus our airways are even more compromised, plus the fact people are probably taking pain and cold remedies which cause drowsiness. Therefore, breathing and sleep apnoea will be worse so we need all the help we can get. Added to this, unrested sleep and low oxygen levels will delay the healing progress. However, there's no doubt about it that wearing a mask is more challenging at times like this and it's even more important to keep up a good cleaning regime of the mask and tube. |
6 July 2016 | Kath Hope  July 2016 is an exciting month for us, as Hope2Sleep has received the good news that we have been granted Official Charity Status, and we're sure you'll be celebrating with us, and willing to help us continue to raise awareness of the common, yet vastly underdiagnosed condition, Sleep Apnoea and Sleep Disordered Breathing! So many people are suffering from this - yet it's one of the few medical conditions out there that doesn't warrant taking medication! |
